The purpose of the Governance Toolkit is to share and discuss resources related on governance of health information. Tools, sample guidance documents, and practical approaches to common challenges are included, with the overall goal of advancing the national dialogue on governance issues of data and information for comparative effectiveness research (CER), patient-centered outcomes research (PCOR), and quality improvement (QI).
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Comparative Outcomes Management with Electronic Data Technologies (COMET) Data Access Agreement, Clete Kushida, Deborah Nichols, James Walsh, Kara Griffin, and Pamela Hyde
ImproveCareNow Network Participation and Data Use Agreement, Joan Gates, Chris Neff, and Richard Colletti
Scalable PArtnering Network (SPAN) for Comparative Effectiveness Research (CER): Purpose, Structure, and Operations, John H. Holmes, Andrew F. Nelson, Marsha A. Raebel, Jeffrey Brown, Arthur Davidson, Thomas E. Elliott, Steven Kelley, Pierre-Andre La Chance, Ella Lyons, Andrea R. Paolino, John F. Steiner, Ileana M. Vargas, Stanley B. Watson, and David L. McClure
Scalable PArtnering Network (SPAN) for Comparative Effectiveness Research (CER): Research User Interface Principles and Requirements, Jeffrey Brown, Arthur Davidson, Thomas E. Elliott, Jason Glanz, John H. Holmes, Pierre-Andre La Chance, Ella Lyons, Andrew McMann, Andrew F. Nelson, David L. McClure, Andrea R. Paolino, Marsha Raebel, Michael R. Shainline, Andrew T. Sterrett, David C. Tabano, Ileana M. Vargas, and Stanley B. Watson